LIVE QUICKIE BLOG

Every filmmaker knows the pressure of a tight shoot – juggling locations, lighting, budgets, and logistics. Imagine doing it all while racing the clock, on a shoestring budget, in a tight New York City apartment, during a fictional city-wide emergency.

I bought a QUICKIE Q50 R Carbon in September 2024, and less than a week later I boarded a flight to Amsterdam where my wife, Linda, and I met up with my two sisters and their partners. It's a beautiful city that I found quite easy to navigate with my wheelchair. These are some of the highlights of our trip.

On June 4^th, 2023, I was finally diagnosed with Myofibrillar Myopathy and Spheroid Myopathy, a Muscular Dystrophy. I was previously misdiagnosed with mitochondrial disease, as were my father and aunt. Thankfully, genetic testing with a proper doctor solved with lifelong mystery for me at 54 years old. I had been slowly losing my ability to walk for many years and now could barely go ten feet. My hands no longer had dexterity and were very weak.

During these cold winter months, it can be nice to stay at home and hibernate with a warm blanket, a hot drink, and a new TV show. However, if you're like me and have wanderlust running through your veins, winter can also be a wonderful time of year to travel.

Life often teaches us that planning is futile. Some believe they have life meticulously mapped out, but the reality is that too many variables are beyond our control, and things rarely go as planned. As a 19-year-old who had just moved to California and was living away from her parents, attending university, and working full-time, I never considered the possibility of living with a disability. But there I was, lying in the ICU, paralyzed.