September 2023

Two Affected with Congenital Muscular Dystrophy Strive for Rare Inclusion

Two Affected with Congenital Muscular Dystrophy Strive for Rare Inclusion

Congenital Muscular Dystrophy (CMD) affected individuals Kelly Berger and Avery Roberts are making their voices heard. Together they hope to tackle misconceptions surrounding disability and give a loud voice to the oft-forgotten rare disease community. CMD is a rare genetic disorder which causes the muscles to break down faster than they can repair or grow, which leaves Berger and Roberts to rely on wheelchairs as their main source of mobility and independence.

Posted on 9/12/2023


Latest Comments

4/6/2025 | Jim morse
Dave is a friend of 30 years and this could not have happened to a stronger person and his wife. ...

4/2/2025 | Michele Ferraro
Such an amazing story and to turn into something so positive

2/5/2025 | Keith Taylor
Proud of you. Nice POV.. keep climbing!

2/5/2025 | Shavone
Your ability to adapt and pivot with such grace is amazing. You are a remarkable human!

8/8/2024 | Nisha
Amazing story!!! So proud of all that you’re accomplishing with your Quickie chair! Your sheer de...

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