September 2023

Two Affected with Congenital Muscular Dystrophy Strive for Rare Inclusion

Two Affected with Congenital Muscular Dystrophy Strive for Rare Inclusion

Congenital Muscular Dystrophy (CMD) affected individuals Kelly Berger and Avery Roberts are making their voices heard. Together they hope to tackle misconceptions surrounding disability and give a loud voice to the oft-forgotten rare disease community. CMD is a rare genetic disorder which causes the muscles to break down faster than they can repair or grow, which leaves Berger and Roberts to rely on wheelchairs as their main source of mobility and independence.

Posted on 9/12/2023


Latest Comments

12/8/2025 | SoCalDBT
I love how these writeups highlight resilience without making it sound like a chore. More like a ...

12/7/2025 | Mish Barriere
Did you end up choosing the Subaru Ascent? My family is similar- 88 lb dog, adult son in tilt and...

4/6/2025 | Jim morse
Dave is a friend of 30 years and this could not have happened to a stronger person and his wife. ...

4/2/2025 | Michele Ferraro
Such an amazing story and to turn into something so positive

2/5/2025 | Keith Taylor
Proud of you. Nice POV.. keep climbing!

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