LIVE QUICKIE BLOG

I'd like to share the realities of traveling with Spinal Muscular Atrophy (SMA) and how I overcome them. I love traveling and have taken trips pretty much around the world. While traveling with SMA can be difficult, nothing is impossible. After all, where there's a wheel, there's a way!

Every summer, hundreds of people gather at a local park for AccessCNY's annual fundraiser, Anything That Rolls. This event brings together manual and power wheelchair users, roller derby teams, bike riders, strollers, scooters, and anything else that rolls. The three-mile paved course along the lake offers participants the opportunity to travel as far as they please, with water and check-in points along the way.

Japan is a beautiful East Asian country rich in history, culture, and most importantly, accessibility. It is known as one of the most accessible nations in the world, and is becoming even better by the year, most likely due to its rapidly aging population. Three years ago, my family and I took a two-week vacation to Japan, and it was one of the best experiences of my life.

Some of the best athletes I know use a wheelchair for everyday mobility and for sport. Getting to know those athletes and their stories of perseverance & overcoming adversity is why I wanted to start this program. Wheelchair Basketball Quinte provides an opportunity for individuals of all physical abilities and exceptionalities to participate in the game of basketball.

Though many CRT users qualify for government assistance, it can still be extremely difficult for many to secure funding for this vital equipment. Currently, the Centers for Medicare and Medicaid Services (CMS) are looking to cut funding to "CRT accessories" for CRT manual wheelchairs. Though referred to as "accessories," these pieces and parts should be referred to as "critical components."